“Surely if you just rest for longer. . .”I wish all I needed was to rest! In fact, when my body decided to totally crash 6 years ago, I did rest; I had no choice but to rest. I was off work for around 4 months – it did not help! “Have […]
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Category: Living as a Zebra
Living as a zebra is a blog following Pippa’s journey living with Ehlers-Danlos syndrome.
When I was diagnosed the consultant talked about the possibility of being in a wheelchair in 10 years, I saw this as a challenge, something to beat; maybe Keith’s personality is rubbing off, as I am normally the most non-competitive person around! I was not going to be disabled by using a wheelchair. I saw […]
Check out my new stripes “When you hear the sound of hooves, think horses, not zebras.” This is a phrase taught to medical students to assume that the simple explanation is usually correct. I am a zebra, I have a complicated and rare condition. You will find that people with EDS love their zebras. […]