The Hypermobility Syndromes Association
We first came across the HMSA just before my wife was diagnosed with Ehlers-Danlos Syndrome after 18 months of misdiagnosis. In 2017 we teamed up with them to raise funds and awareness through my Ironcause Middle 52 challenge. We continue to work with them to help raise awareness through events and challenges I take part in.
The HMSA is a charity who offers both practical support and Information Standard accredited health and care information to people who have a hypermobility syndrome, or who are involved in the care of someone with any of the hypermobility syndromes: including Joint Hypermobility Syndrome, Ehlers-Danlos Syndrome (all sub-types) Marfan Syndrome, Stickler Syndrome, Pseudo Xanthoma and Osteogenesis Imperfecta.
They are run by people affected by a hypermobility syndrome, for people with a hypermobility syndrome, and a number of the HMSA’s staff and volunteers are also medical professional in their own right, which enables the charity to offer advice and support to relevant professionals (including social works, GPs, consultants, physiotherapists, Occupational therapists, physiologists and teachers). The HMSA is therefore one of the few charities offering support to both people with a medical condition and the professionals treating and supporting them.
The Hypermobility Syndromes Association (HMSA)is a UK charity but we are happy to support people with Hypermobility syndromes worldwide. The Hypermobility Syndromes Association is a charity registered in England and Wales (1011063) and in Scotland (SC037916)